Saturday, October 16, 2010
The emotions of a Microtia parent
My journey with Josh's microtia is relatively young just 6 months and one week now.I have discovered however that there are so many emotions that come with being a mommy of a child with this rare birth defect.The first emotion I felt was guilt.Simply put you find every reason to blam yourself and if you don't you have someone cold hearted enough to ask you what you did wrong when you were pregnant like I did.There is still guilt as I walk thru the first of what will be many appointments to Seattle Childrens.After the guilt wears off then it turns to helplessness and fear.Helplessness cause you aren't sure where to turn and fear cause your baby is having trouble with fluid pockets and no one can give you answers.Try as you might you can't figure out where to turn thankfully I found two support groups that are wonderful.The fear comes and goes but I am so thankful for a Heavenly Father who is guiding me thru all this.The best news of all is that I don't have to be alone in this journey there are people to pray with me and walk thru this.So now I choose to be thankful.Thankful for my little ray of sunshine named Josh who wakes up happy with a smile and truly is a miracle baby.
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Missy,
ReplyDeleteAny mom with a child born with some type of deformity/abnormality feels guilty. What did I do wrong during pregnancy?
Lucas was born with a multi-cystic dyplastic kidney- necessitaing his early delivery via c-section at 36 1/2 weeks.
When I was reading up on his condition, it said it was most common in moms who'd done cocaine. I've never touched any type of drug. I felt very guilty too.
His birth defect is rare 1 in 4-6,000 live births. Nobody can tell us why. But our boys are blessings that can go on to lead normal lives.
Blessings dear friend.