6 months ago God gave us the most incredible little boy!Josh was born perfect in every way except he was born with Microtia.Alot of people know nothing about this rare condition and I know I may be scoffed at for making a public blog about such a condition but awareness needs to be brought to attention.Microtia is a facial deformity that affects anywhere from between 1 and 6-10,000 people.
This deformity involves one or both ears.In Josh's case his left ear is affected.He was also born with no ear canal a condition called Atresia.We have yet to be formally diagnosed by the specialist why well it has taken us til now to be referred up to Seattle and now we are being told we are driving 5 hours for a 15 min appt.This blog will be a place to vent and share about this condition as well as what it is like for me as his mom on this journey.
hi I just found your blog from the group on facebook. We're in Spokane, WA and go to Seattle Children's. Where in Washington are you? I'd love to chat with you. My daughter is 27 months and I know the first few years have been rough but after the initial few months we felt a little better about everything.
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