Fluid pockets and ear pain

Joshua is experiencing fluid pockets and ear pain again.Such a trooper the little man is.His six month checkup is tomorrow and hopefully we can get some answers and decide whether to place an ear tube in his non affected ear to help with drainage issues.

The emotions of a Microtia parent

My journey with Josh's microtia is relatively young just 6 months and one week now.I have discovered however that there are so many emotions that come with being a mommy of a child with this rare birth defect.The first emotion I felt was guilt.Simply put you find every reason to blam yourself and if you don't you have someone cold hearted enough to ask you what you did wrong when you were pregnant like I did.There is still guilt as I walk thru the first of what will be many appointments to Seattle Childrens.After the guilt wears off then it turns to helplessness and fear.Helplessness cause you aren't sure where to turn and fear cause your baby is having trouble with fluid pockets and no one can give you answers.Try as you might you can't figure out where to turn thankfully I found two support groups that are wonderful.The fear comes and goes but I am so thankful for a Heavenly Father who is guiding me thru all this.The best news of all is that I don't have to be alone in this journey there are people to pray with me and walk thru this.So now I choose to be thankful.Thankful for my little ray of sunshine named Josh who wakes up happy with a smile and truly is a miracle baby.

Beginning a Journey

6 months ago God gave us the most incredible little boy!Josh was born perfect in every way except he was born with Microtia.Alot of people know nothing about this rare condition and I know I may be scoffed at for making a public blog about such a condition but awareness needs to be brought to attention.Microtia is a facial deformity that affects anywhere from between 1 and 6-10,000 people.
This deformity involves one or both ears.In Josh's case his left ear is affected.He was also born with no ear canal a condition called Atresia.We have yet to be formally diagnosed by the specialist why well it has taken us til now to be referred up to Seattle and now we are being told we are driving 5 hours for a 15 min appt.This blog will be a place to vent and share about this condition as well as what it is like for me as his mom on this journey.